Friday, February 22, 2013

CP = Cutie Pie...results are in (sort of)

Today I finally managed to get through to the hospital department I needed, and the Registrar contacted me to fill me in on BoyWonder's MRI report.  She was not able to give me as much information as I had hoped, and I'll still need to wait for an appointment to talk with the specialist.  The hold-up has been that BW's over-seeing doctor fell ill suddenly and had to stop working, so we were left behind in the abyss of cases without a case manager. But anyway...getting the point...
The GREAT news is that it seems as though BW does NOT have coeliac (yay!) so that's a big 'tick' off our list of things to no longer need  to think about.  The other blood tests are all so far, so good and some of the genetic test results are not back yet.
No longer need to worry about this.
(Source: Google)





(Source: Google)

As for the MRI, the Reg was not able to give me much information other than that there was nothing hugely abnormal on the spine or brain, and we'll need to follow up with the Cerebral Palsy clinic.  I wasn't expecting anything major to show up on the scan, but its a big relief all the same.  

So other than that, we just continue with physio and swimming, and will go from here.  As BoyWonder is soon approaching two,  a few professionals have mentioned the possibility of Botox Therapy in his right ankle/calf.  I'm not really sure how I feel about this suggestion...the idea of putting a toxic substance (even though I know it's safe in small doses) in our  little boy's body doesn't sit too well with TechnoHusband and I.  We were maybe thinking of waiting until he is old enough to consent to it himself. Or old enough to let us know he is happy the way he is and doesn't want to change it.  At the same time though his ankle is starting to get a bit tighter as he grows, and I've heard of plenty of positive outcomes from people who have gone ahead with it.  We just want to do what's best for our BoyWonder. 
(Source: Google)


He's had a an ear infection this week and has gone back to doing quite a bit of crawling.  My guess is that his balance is off and making him feel a little less confident on his feet. The joys!  Here's hoping for a non-eventful, health-full week next week! 

6 comments:

  1. I have a good friend whose little boy...I think he is three now...has CP and they have gone the Botox route and will excellent effect.
    He wasn't walking but now cruises along with the help of a little frame.
    Anyway, if you want to talk to another mother who has weighed up the options, I am happy to put you two in contact with each other!

    I hope you are having a lovely weekend!

    ReplyDelete
  2. So glad you got the results back and some good news. I know it's a tough decision to make regarding the Botox, but I'm sure you'll make the right now :)

    Hope you all have a lovely weekend :)

    ReplyDelete
    Replies
    1. Thanks Sandra! We actually had a brilliant weekend- full of fun and adventure!

      Delete
  3. I'm glad to hear that the test results were good!

    Sometimes botox is used to treat bladder issues in people with spina bifida, and the adults with spina bifida I've talked to about it have been really happy with the results. I don't know much about the use for people with CP, but so far I've only heard good things.

    ReplyDelete
    Replies
    1. Wow bladder issues....it's amazing what uses they are finding for things these days. That is wonderful!

      Delete